Avdeling vernepleie (Harstad)

Disability leisure: in what kind of activities, and when and how do youths with intellectual disabilities participate?

2016-12-14T00:00:00Z

Melbøe, Line; Ytterhus, Borgunn
The article examines what kind of activities youths with intellectual disabilities participate in during their leisure time, and when and how they participate. The analysis is based on qualitative interviews of 10 youths with intellectual disabilities (aged 13–16) and their parents (N = 20). The study reveals that intellectually disabled youths have the same preferences and wishes for leisure activities as their non-disabled peers. Both genders prefer sports and cultural activities. However, a closer examination reveals marginalization of intellectually disabled youths from leisure activities organized for young people in general. In our society, the understanding that leisure activities are a private concern is based on the idea of the ‘normate’. The ‘normate’ emerges when we explore the social processes of participation that constitute otherness and systematically marginalize groups of people, here intellectually disabled youths, from organized leisure activities.
This is an Accepted Manuscript published by Taylor & Francis Group in Scandinavian Journal of Disability Research. Published version at http://dx.doi.org/10.1080/15017419.2016.1264467

Ethical and methodological issues in research with Sami experiencing disability

2016-07-06T00:00:00Z

Melbøe, Line; Hansen, Ketil Lenert; Johnsen, Bjørn-Eirik; Fedreheim, Gunn Elin; Dinesen, Tone Åshild; Minde, Gunn-Tove; Rustad, Marit
Background: A study of disability among the indigenous Sami people in Norway presented a number of ethical and methodological challenges rarely addressed in the literature.

Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these.

Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian).

Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability.

Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability.
Published version. Source at http://dx.doi.org/10.3402/ijch.v75.31656

Trade-offs in pastoral governance in Norway: Challenges for biodiversity and adaptation

2016-02-08T00:00:00Z

Risvoll, Camilla; Fedreheim, Gunn Elin; Galafassi, Diego
Norway is committed to the two-fold policy objective of preserving biodiversity and maintaining traditional local livelihoods. This creates management dilemmas with the potential to undermine the legitimacy of both national and international policies. In this article, we take a social-ecological perspective to highlight how these two policy objectives are linked and interdependent and, therefore, subjected to complex dynamics between institutions and ecosystems. We use a case study in northern Norway to discuss trade-offs in the implementation of the two-fold conservation objectives.

Based on interviews, a focus group meeting with 16 reindeer herders and stakeholders and participant observations during a grazing committee meeting, we identified that ecological dynamics between carnivores, sheep and grassland patterns are central to this trade-off. We demonstrate how current governance instruments in carnivore management do not address the spatial dynamics of carnivores leading to a perceived conflict between environmentalist groups and farmers around questions of carnivore protection and sheep killings by carnivores. Fragmentation in the multi-layered governance system prevents ongoing dialogue among various actors, thereby enhancing antagonisms while reducing the likelihood of the emergence and implementation of adaptation measures and practices.
Published version. Source: https://pastoralismjournal.springeropen.com/articles/10.1186/s13570-016-0051-3

Humanistisk og estetisk omsorg: Om medborgerskap, kulturell identitet og ukrenkelig menneskeverd

2016-01-01T00:00:00Z

Gjærum, Rikke Gürgens; Kinn, Henny
Antallet eldre personer øker i befolkningen. Dette fordrer kreativ, proaktiv og estetisk samfunnsplanlegging med tanke på å bygge en bærekraftig fremtid. Færre yrkesaktive og flere pensjonister krever nye løsninger. Artikkelen belyser hvordan samfunnet vårt kan møte det økende antallet personer med sykdommen demens gjennom humanistisk og estetisk omsorg, når målet er å ivareta, individets tilhørighet og medborgerskap, identitet og ukrenkelige menneskeverd. Artikkelen er basert på fire studier av aldring, levekår og livskvalitet fra 2005-2015, og en gjennomgang av nyere forskning samt aktuelle politiske føringer for eldreomsorgen
This work is licensed under a Creative Commons Attribution 4.0 International License.
This article is also available via DOI:10.7577/if.v5i2.1847