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Now showing items 190-192 of 192

Å skape et hjem – kvinners plass i den tidlige institusjonsbyggingen. Nord-Norge før 1940

Hamran, Torunn (Journal article; Tidsskriftartikkel; Peer reviewed, 2007)

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Abstract:

Scandinavian welfare research has paid more and more attention to the role played by women in building institutions for children, the sick and the elderly. The new institutions were generally called ”homes” and it was precisely this linkage between women and homes that may have led to clear perceptions of what the new ”homes” were like. Concepts like motherliness, homeliness and intimacy are presented as important characteristics, despite (or because of ) the lack of empirical evidence. Historical research has shown that the home was highly idealised around the turn of the last century, but this idealisation was prescriptive and did not necessarily reflect real homes. The aim of this article is to argue that an institution, or any social system, cannot be perceived in isolation from the particular parties that created them – or from the place where they were created. Only then is it possible to say something about which or whose concept of a home was (attempted) realised. A phenomenological perspective on the home will often take as its starting point people’s need for identity, intimacy, security and meaningfulness. From a sociological point of view, the aspects that phenomenology pinpoints as important are created through time-consuming work and relevant categories can be connected with how the work is organised. ”A home” can be a lot of things, so the analysis must draw on both material, structural and symbolic aspects.

URI:

http://hdl.handle.net/10037/1224

File(s) in this item: 1

article.pdf (158.2Kb)

"Armoden lar seg ikke skjule, heldigvis er den ikke selvforskyldt". I Varanger Årbok 2007 : Liv og helse

Elstad, Ingunn (Chapter; Bokkapittel, 2007)

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URI: http://hdl.handle.net/10037/3208

File(s) in this item: 1

article.pdf (113.8Kb)

"Fighting the system" : families caring for ventilator-dependent children and adults with complex health care needs at home

Dybwik, Knut; Tollåli, Terje; Nielsen, Erik Waage; Brinchmann, Berit Støre (Journal article; Tidsskriftartikkel; Peer reviewed, 2011)

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Abstract:	An increasing number of individuals with complex health care needs now receive life-long and lifeprolonging ventilatory support at home. Family members often take on the role of primary caregivers. The aim of this study was to explore the experiences of families giving advanced care to family members dependent on home mechanical ventilation. Using qualitative research methods, a Grounded Theory influenced approach was used to explore the families’ experiences. A total of 15 family members with 11 ventilator-dependent individuals (three children and eight adults) were recruited for 10 in-depth interviews. The core category, “fighting the system,” became the central theme as family members were asked to describe their experiences. In addition, we identified three subcategories, “lack of competence and continuity”, “being indispensable” and “worth fighting for”. This study revealed no major differences in the families’ experiences that were dependent on whether the ventilator-dependent individual was a child or an adult. These findings show that there is a large gap between family members’ expectations and what the community health care services are able to provide, even when almost unlimited resources are available. A number of measures are needed to reduce the burden on these family members and to make hospital care at home possible. In the future, the gap between what the health care can potentially provide and what they can provide in real life will rapidly increase. New proposals to limit the extremely costly provision of home mechanical ventilation in Norway will trigger new ethical dilemmas that should be studied further.
Description:	This article is part og Knut Dybwig's doctoral thesis. Available in Munin at http://hdl.handle.net/10037/3692
URI:	http://hdl.handle.net/10037/3841

File(s) in this item: 1

article.pdf (233.8Kb)

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Browsing Artikler, rapporter og annet (klinisk medisin) by Title

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Browsing Artikler, rapporter og annet (klinisk medisin) by Title

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