• A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities 

      Beukelman, Timothy; Anink, Janneke; Berntson, Lillemor; Duffy, Ciaran; Ellis, Justine A.; Glerup, Mia; Guzman, Jaime; Horneff, Gerd; Kearsley-Fleet, Lianne; Klein, Ariane; Klotsche, Jens; Magnusson, Bo; Minden, Kirsten; Munro, Jane E.; Niewerth, Martina; Nordal, Ellen Berit; Ruperto, Nicolino; Santos, Maria José; Schanberg, Laura E.; Thomson, Wendy; Suijlekom-Smit, Lisette van; Wulffraat, Nico; Hyrich, Kimme (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-04-19)
      Background: To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. <br> <br> Methods: We surveyed investigators from North America, Europe, and Australia about existing JIA cohort studies and registries. We excluded cross-sectional studies. We captured ...