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dc.contributor.authorHansen, Frank
dc.contributor.authorBerntsen, Gro Karine Rosvold
dc.contributor.authorSalamonsen, Anita
dc.date.accessioned2018-12-14T08:51:30Z
dc.date.available2018-12-14T08:51:30Z
dc.date.issued2018-12-12
dc.description.abstract<p><i>Purpose</i>: Person-centred care (PCC) is a well-acknowledged goal throughout the western world both within the health care services sector and for the patients themselves. To be able to create a future health care system that includes improved PCC, we need more in-depth knowledge of what matters to patients, how “what matters” might change over time, and tentative descriptions of commonalities across patients’ perspectives. The aim of this study is to contribute to this knowledge base.</p> <p><i>Methods</i>: We conducted a qualitative interview series over one year with nine Norwegian patients who were recently diagnosed with rectal cancer tumor-node-metastasis stage I–III.</p> <p><i>Results</i>: We found that: (1) patients have an initial focus on “biological goals” and conventional treatment; (2) pathways are unique and dynamic; (3) family and friends affected patient pathways positively with respect to meaningfulness and quality of life, but for some participants also negatively because there were heavy burdens of caretaking; (4) receiving help in the health care system depended on the patients’ navigation skills; (5) pluralism in health-seeking behaviour was important in all patient pathways.</p> <p><i>Conclusion</i>: Long lasting illness may be a dynamic and complex journey. These results represent some features of a pathway with cancer and are important because they contribute with knowledge about what matters most seen from the cancer patients’ point of view.en_US
dc.description.sponsorshipThe Norwegian Cancer Society UiT The Artic University of Norwayen_US
dc.identifier.citationHansen, F., Berntsen, G.K.R. & Salamonsen, A. (2018). “What matters to you?” A longitudinal qualitative study of Norwegian patients’ perspectives on their pathways with colorectal cancer. <i>International Journal of Qualitative Studies on Health and Well-being</i>, 13(1). https://doi.org/10.1080/17482631.2018.1548240en_US
dc.identifier.cristinIDFRIDAID 1642610
dc.identifier.doi10.1080/17482631.2018.1548240
dc.identifier.issn1748-2623
dc.identifier.issn1748-2631
dc.identifier.urihttps://hdl.handle.net/10037/14334
dc.language.isoengen_US
dc.publisherCo-Action Publishingen_US
dc.relation.ispartofHansen, F. (2023). On the path to healing - A qualitative longitudinal study of colorectal cancer patients’ accounts of trajectories to healing in Norway. (Doctoral thesis). <a href=https://hdl.handle.net/10037/31407>https://hdl.handle.net/10037/31407</a>.
dc.relation.journalInternational Journal of Qualitative Studies on Health and Well-being
dc.rights.accessRightsopenAccessen_US
dc.subjectVDP::Medical disciplines: 700::Health sciences: 800en_US
dc.subjectVDP::Medisinske Fag: 700::Helsefag: 800en_US
dc.subjectcolorectal canceren_US
dc.subjectlongitudinal studyen_US
dc.subjectpatientcentrednessen_US
dc.subjectperson-centred careen_US
dc.subjectsupportive cancer careen_US
dc.subjectillness trajectoriesen_US
dc.subjectpatient pathwaysen_US
dc.title“What matters to you?” A longitudinal qualitative study of Norwegian patients’ perspectives on their pathways with colorectal canceren_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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