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dc.contributor.authorHägglund, Maria
dc.contributor.authorKharko, Anna
dc.contributor.authorHagström, Josefin
dc.contributor.authorBärkås, Annika
dc.contributor.authorBlease, Charlotte
dc.contributor.authorCajander, Åsa
dc.contributor.authorDesRoches, Catherine
dc.contributor.authorFagerlund, Asbjørn Johansen
dc.contributor.authorHaage, Barbara
dc.contributor.authorHuvila, Isto
dc.contributor.authorHörhammer, Iiris
dc.contributor.authorKane, Bridget
dc.contributor.authorKlein, Gunnar O.
dc.contributor.authorKristiansen, Eli
dc.contributor.authorLuks, Kerli
dc.contributor.authorMoll, Jonas
dc.contributor.authorMuli, Irene
dc.contributor.authorRaphaug, Eline Hovstad
dc.contributor.authorRexhepi, Hanife
dc.contributor.authorRiggare, Sara
dc.contributor.authorRoss, Peeter
dc.contributor.authorScandurra, Isabella
dc.contributor.authorSimola, Saija
dc.contributor.authorSoone, Hedvig
dc.contributor.authorWang, Bo
dc.contributor.authorZolbin, Maedeh Ghorbanian
dc.contributor.authorÅhlfeldt, Rose-Mharie
dc.contributor.authorKujala, Sari
dc.contributor.authorJohansen, Monika Alise
dc.date.accessioned2024-01-04T12:58:14Z
dc.date.available2024-01-04T12:58:14Z
dc.date.issued2023-11-13
dc.description.abstractBackground: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH.<p> <p>Objective: We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia.<p> <p>Methods: A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics.<p> <p>Results: In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as “fair” (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record “2 to 9 times” (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it “more than 20 times” (4571/13,008, 35.14%).<p> <p>Conclusions: This is the first large-scale international survey to compare patient users’ sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients’ experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.en_US
dc.identifier.citationHägglund, Kharko, Hagström, Bärkås, Blease, Cajander, DesRoches, Fagerlund, Haage, Huvila, Hörhammer, Kane, Klein, Kristiansen, Luks, Moll, Muli, Raphaug, Rexhepi, Riggare, Ross, Scandurra, Simola, Soone, Wang, Zolbin, Åhlfeldt, Kujala, Johansen. The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia. Journal of Medical Internet Research. 2023;25en_US
dc.identifier.cristinIDFRIDAID 2139304
dc.identifier.doi10.2196/47573
dc.identifier.issn1438-8871
dc.identifier.urihttps://hdl.handle.net/10037/32317
dc.language.isoengen_US
dc.publisherJMIR Publicationsen_US
dc.relation.journalJournal of Medical Internet Research
dc.rights.accessRightsopenAccessen_US
dc.rights.holderCopyright 2023 The Author(s)en_US
dc.rights.urihttps://creativecommons.org/licenses/by/4.0en_US
dc.rightsAttribution 4.0 International (CC BY 4.0)en_US
dc.titleThe NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estoniaen_US
dc.type.versionpublishedVersionen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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Attribution 4.0 International (CC BY 4.0)
Except where otherwise noted, this item's license is described as Attribution 4.0 International (CC BY 4.0)