• Oral health-related quality of life, impaired physical health and orofacial pain in children and adolescents with juvenile idiopathic arthritis – a prospective multicenter cohort study 

      Halbig, Josefine Mareile; Jönsson, Birgitta; Gil, Elisabeth Grut; Åstrøm, Anne-Kristine N; Rypdal, Veronika Gjertsen; Frid, Paula Hanna Therese; Augdal, Thomas Angell; Fischer, Johannes Maria; Cetrelli, Lena Elisabet; Rygg, Marite; Lundestad, Anette; Tylleskär, Karin Birgitta; Nordal, Ellen Berit (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-11-20)
      Background - Knowledge on oral health-related quality of life (OHRQoL) in children and adolescents with juvenile idiopathic arthritis (JIA) is limited, and longitudinal studies are lacking. We aimed to describe OHRQoL in children and adolescents with JIA compared to controls, and to explore the validity and internal consistency of the Early Childhood Oral Health Impact Scale (ECOHIS) and the Child ...
    • Participation in school and physical education in juvenile idiopathic arthritis in a Nordic long-term cohort study 

      Nordal, Ellen Berit; Rypdal, Veronika Gjertsen; Arnstad, Ellen Dalen; Aalto, Kristiina; Berntson, Lillemor; Ekelund, Maria; Fasth, Anders; Glerup, Mia; Herlin, Troels; Nielsen, Susan; Peltoniemi, Suvi; Zak, Marek; Songstad, Nils Thomas; Rygg, Marite (Journal article; Tidsskriftartikkel; Peer reviewed, 2019-07-15)
      <i>Background</i> - The aim of the study was to describe school attendance and participation in physical education in school among children with juvenile idiopathic arthritis (JIA).<p> <p><i>Methods</i> - Consecutive cases of JIA from defined geographical areas of Finland, Sweden and Norway with disease onset in 1997 to 2000 were followed for 8 years in a multi-center cohort study, aimed to be ...
    • Predicting unfavorable long-term outcome in juvenile idiopathic arthritis: Results from the Nordic cohort study 

      Rypdal, Veronika Gjertsen; Arnstad, Ellen Dalen; Aalto, Kristiina; Berntson, Lillemor; Ekelund, Maria; Fasth, Anders; Glerup, Mia; Herlin, Troels; Nielsen, Susan; Peltoniemi, Suvi; Zak, Marek; Rygg, Marite; Rypdal, Martin Wibe; Nordal, Ellen Berit (Journal article; Tidsskriftartikkel; Peer reviewed, 2018-05-03)
      <i>Background</i>: The aim was to develop prediction rules that may guide early treatment decisions based on baseline clinical predictors of long-term unfavorable outcome in juvenile idiopathic arthritis (JIA). <p> <p><i>Methods</i>: In the Nordic JIA cohort, we assessed baseline disease characteristics as predictors of the following outcomes 8 years after disease onset. Non-achievement of ...
    • Psoriasis and associated variables in classification and outcome of juvenile idiopathic arthritis - an eight-year follow-up study 

      Ekelund, Maria; Aalto, Kristiina; Fasth, Anders; Nielsen, Susan; Nordal, Ellen Berit; Peltoniemi, Suvi; Rygg, Marite; Zak, Marek; Berntson, Lillemor (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-02-22)
      Background<br> To study the impact of psoriasis and features associated with psoriasis on classification and outcome in a population-based follow-up cohort of children with juvenile idiopathic arthritis (JIA).<p> Methods<br> In all, 440 children with JIA were followed for a median of 8 years in a prospective Nordic population-based cohort study. Data for remission was available for 427 of these ...
    • Pulmonary manifestations and progression of lung disease in juvenile-onset mixed connective tissue disease 

      Hetlevik, Siri Opsahl; Flatø, Berit; Aaløkken, Trond Mogens; Samersaw-Lund, May Brit; Reiseter, Silje; Mynarek, Georg; Nordal, Ellen Berit; Rygg, Marite; Lilleby, Vibke (Journal article; Tidsskriftartikkel; Peer reviewed, 2019-01-01)
      <i>Objective</i> - To assess the occurrence and extent of interstitial lung disease (ILD) in patients with juvenile mixed connective tissue disease (JMCTD), compare pulmonary function in patients and matched controls, study associations between ILD and disease-related variables, and examine progression of pulmonary manifestations over time.<p> <p><i>Methods</i> - A cohort of 52 patients with JMCTD ...
    • Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study 

      van Straalen, Joeri W.; de Roock, Sytze; Giancane, Gabriella; Consolaro, Alessandro; Rygg, Marite; Nordal, Ellen Berit; Rubio-Pérez, Nadina; Jelusic, Marija; De Inocencio, Jaime; Vojinovic, Jelena; Wulffraat, Nico M.; Bruijning-Verhagen, Patricia C. J.; Ruperto, Nicolino; Swart, Joost F. (Journal article; Tidsskriftartikkel; Peer reviewed, 2022-11-14)
      Background: Etanercept (ETN) and adalimumab (ADA) are considered equally efective biologicals in the treat‑ ment of arthritis in juvenile idiopathic arthritis (JIA) but no studies have compared their impact on patient-reported well-being. The objective of this study was to determine whether ETN and ADA have a diferential efect on patientreported well-being in non-systemic JIA using real-world ...
    • Salivary Oral Microbiome of Children With Juvenile Idiopathic Arthritis: A Norwegian Cross-Sectional Study 

      Frid, Paula; Baraniya, Divyashri; Halbig, Josefine Mareile; Rypdal, Veronika Gjertsen; Songstad, Nils Thomas; Rosén, Annika; Berstad, Johanna Elisabeth Rykke; Flatø, Berit; Alakwaa, Fadhl; Gil, Elisabeth Grut; Cetrelli, Lena Elisabet; Chen, Tsute; Al-hebshi, Nezar Noor; Nordal, Ellen Berit; Al-Haroni, Mohammed (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-11-04)
      <i>Background</i>: The oral microbiota has been connected to the pathogenesis of rheumatoid arthritis through activation of mucosal immunity. The objective of this study was to characterize the salivary oral microbiome associated with juvenile idiopathic arthritis (JIA), and correlate it with the disease activity including gingival inflammation.<p> <i>Methods</i>: Fifty-nine patients with JIA ...
    • Standardizing Terminology and Assessment for Orofacial Conditions in Juvenile Idiopathic Arthritis: International, Multidisciplinary Consensus-based Recommendations 

      Stoustrup, Peter; Resnick, Cory M; Pedersen, Thomas Klit; Abramowicz, Shelly; Michelotti, Ambra; Küseler, Annelise; Verna, Carlalberta; Kellenberger, Christian J.; Nordal, Ellen Berit; Caserta, Giuliana; Jankovska, Iveta; Halbig, Josefine Mareile; Kristensen, Kasper Dahl; Arvidsson, Linda Zamoline; Spiegel, Lynn; Stoll, Mathew L.; Lerman, Melissa; Glerup, Mia; Defabianis, Patrizia; Frid, Paula Hanna Therese; Alstergren, Per; Cron, Randy Q.; Ringold, Sarah; Nørholt, Sven Erik; Peltomäki, Timo; Herlin, Troels; Peacock, Zachary S.; Twilt, Marinka (Journal article; Tidsskriftartikkel; Peer reviewed, 2019-05-01)
      <i>Objective</i> - To propose multidisciplinary, consensus-based, standardization of operational terminology and method of assessment for temporomandibular joint (TMJ) involvement in juvenile idiopathic arthritis (JIA).<p> <p><i>Methods</i> - Using a sequential expert group–defined terminology and methods-of-assessment approach by (1) establishment of task force, (2) item generation, (3) working ...
    • A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities 

      Beukelman, Timothy; Anink, Janneke; Berntson, Lillemor; Duffy, Ciaran; Ellis, Justine A.; Glerup, Mia; Guzman, Jaime; Horneff, Gerd; Kearsley-Fleet, Lianne; Klein, Ariane; Klotsche, Jens; Magnusson, Bo; Minden, Kirsten; Munro, Jane E.; Niewerth, Martina; Nordal, Ellen Berit; Ruperto, Nicolino; Santos, Maria José; Schanberg, Laura E.; Thomson, Wendy; Suijlekom-Smit, Lisette van; Wulffraat, Nico; Hyrich, Kimme (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-04-19)
      Background: To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. <br> <br> Methods: We surveyed investigators from North America, Europe, and Australia about existing JIA cohort studies and registries. We excluded cross-sectional studies. We captured ...
    • Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience 

      Mikola, Katriina; Rebane, Katariina; Arnstad, Ellen Dalen; Berntson, Lillemor; Fasth, Anders; Glerup, Mia; Herlin, Troels; Kautiainen, Hannu; Nielsen, Susan; Nordal, Ellen Berit; Peltoniemi, Suvi; Rygg, Marite; Rypdal, Veronika; Zak, Marek; Aalto, Kristiina (Journal article; Tidsskriftartikkel; Peer reviewed, 2022-10-01)
      Background: With juvenile idiopathic arthritis (JIA), there are several protocols and practices used worldwide for the transition from paediatric to adult care. In this study, we examined the transferral rates and disease activity after transition, as well as the disease- and health-related outcomes. We also introduce the transition practices employed in the Nordic countries.<p> <p>Methods: The ...