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dc.contributor.authorDenecke, Kerstin
dc.contributor.authorBamidis, Panagiotis D.
dc.contributor.authorBond, Carol
dc.contributor.authorGabarron, Elia
dc.contributor.authorHouseh, M
dc.contributor.authorLau, A. Y. S.
dc.contributor.authorMayer, Miguel A.
dc.contributor.authorMerolli, Mark
dc.contributor.authorHansen, Margareth
dc.date.accessioned2016-03-22T11:44:06Z
dc.date.available2016-03-22T11:44:06Z
dc.date.issued2015-08-13
dc.description.abstractOBJECTIVE: Social media, web and mobile technologies are increasingly used in healthcare and directly support patientcentered care. Patients benefit from disease self-management tools, contact to others, and closer monitoring. Researchers study drug efficiency, or recruit patients for clinical studies via these technologies. However, low communication barriers in socialmedia, limited privacy and security issues lead to problems from an ethical perspective. This paper summarizes the ethical issues to be considered when social media is exploited in healthcare contexts. METHODS: Starting from our experiences in social-media research, we collected ethical issues for selected social-media use cases in the context of patient-centered care. Results were enriched by collecting and analyzing relevant literature and were discussed and interpreted by members of the IMIA Social Media Working Group. RESULTS: Most relevant issues in social-media applications are confidence and privacy that need to be carefully preserved. The patient-physician relationship can suffer from the new information gain on both sides since private information of both healthcare provider and consumer may be accessible through the Internet. Physicians need to ensure they keep the borders between private and professional intact. Beyond, preserving patient anonymity when citing Internet content is crucial for research studies. CONCLUSION: Exploiting medical social-media in healthcare applications requires a careful reflection of roles and responsibilities. Availability of data and information can be useful in many settings, but the abuse of data needs to be prevented. Preserving privacy and confidentiality of online users is a main issue, as well as providing means for patients or Internet users to express concerns on data usage.en_US
dc.descriptionAccepted manuscript version. This article is not an exact copy of the original published article in The IMIA Yearbook of Medical Informatics. The definitive publisher-authenticated version of "Ethical Issues of Social Media Usage in Healthcare" is available online at <a href=http://doi.org/10.15265/IY-2015-001>http://doi.org/10.15265/IY-2015-001</a>.en_US
dc.identifier.citationIMIA Yearbook of Medical Informatics 2015, 10(1):137-147en_US
dc.identifier.cristinIDFRIDAID 1261079
dc.identifier.doi10.15265/IY-2015-001
dc.identifier.urihttps://hdl.handle.net/10037/9056
dc.identifier.urnURN:NBN:no-uit_munin_8650
dc.language.isoengen_US
dc.publisherSchattaueren_US
dc.rights.accessRightsopenAccess
dc.subjectSocial mediaen_US
dc.subjectinformation scienceen_US
dc.subjecthealth care ethicsen_US
dc.subjectpatient-centered careen_US
dc.subjectVDP::Medisinske Fag: 700::Helsefag: 800en_US
dc.titleEthical Issues of Social Media Usage in Healthcareen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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