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dc.contributor.authorLian, Olaug S
dc.contributor.authorRapport, Frances
dc.date.accessioned2017-02-24T08:42:26Z
dc.date.available2017-02-24T08:42:26Z
dc.date.issued2016-10-01
dc.description.abstractIn this article, we explore the role of ‘place’ in shaping people’s illness experiences through a data-led inductive case-study based on experiential data from people living with myalgic encephalomyelitis (ME) in Norway. Our main aim is to understand how they experience, interpret and attach meaning to various places in which they reside, and how they construct the course of a life influenced by chronic illness. The study is based on stories containing photographs and written texts, received from 10 women and men. In their stories, they describe those places where they experience their illness in the least and most taxing ways. Through a narrative and photographic analysis of their stories, we explore how they perceive the relationship between place and illness as experienced, managed and endured. Our analysis is based on a place-sensitive sociology, in which we approach place both as physicality and a symbolic construction. The participants describe how a wide range of places are intimately linked to their illness experiences, and they interpret these links by referring to both physical and symbolic factors. They describe their lives in terms of a need for equilibrium between activity and rest. Risk is a strong underlying theme: whatever they do, they risk losing something. Most of all, the participants describe how they are looking for places to escape to and from. Places to escape to are those places where privacy and peace can be found, which primarily revolve around being at home. Places to escape from are those places that make their energy ‘slowly ebb away’.en_US
dc.descriptionPublished version available at <a href=https://doi.org/10.1177/1363459315622041> https://doi.org/10.1177/1363459315622041 </a>en_US
dc.identifier.citationHealth 2016, 20(6):578-598en_US
dc.identifier.cristinIDFRIDAID 1310043
dc.identifier.doi10.1177/1363459315622041
dc.identifier.issn1363-4593
dc.identifier.urihttps://hdl.handle.net/10037/10355
dc.language.isoengen_US
dc.publisherSAGE Publicationsen_US
dc.relation.projectIDinfo:eu-repo/grantAgreement/RCN/HELSEVEL/212987/Norway/Quality, accessibility and coordination of health care in Norway for people with chronic illnesses - seen from the users point of view//en_US
dc.relation.urihttp://hea.sagepub.com/content/early/2015/12/31/1363459315622041.full.pdf+html
dc.rights.accessRightsopenAccessen_US
dc.subjectchronic illness and disabilityen_US
dc.subjectexperiencing illness and narrativesen_US
dc.subjectillness behaviouren_US
dc.subjectVDP::Medisinske Fag: 700::Helsefag: 800en_US
dc.subjectVDP::Medical disciplines: 700::Health sciences: 800en_US
dc.titleLife according to ME: Caught in the ebb-tideen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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