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dc.contributor.authorManskow, Unn Sollid
dc.contributor.authorFriborg, Oddgeir
dc.contributor.authorRøe, Cecilie
dc.contributor.authorBraine, Mary
dc.contributor.authorDamsgård, Elin
dc.contributor.authorAnke, Audny
dc.date.accessioned2018-07-02T08:47:15Z
dc.date.available2018-07-02T08:47:15Z
dc.date.issued2017-03-27
dc.description.abstract<p><i>OBJECTIVE</i>: To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient’s functional status, family members social network or level of burden at 1 year.</p> <p><i>METHODS</i>: Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated.</p> <p><i>MAIN OUTCOME MEASURE</i>: The Caregiver Burden Scale (CBS), life satisfaction.</p> <p><i>RESULTS</i>: Total burden increased between years 1 and 2 post-injury (P = 0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR = 4.35, P < 0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p = 0.03).</p> <p><i>CONCLUSIONS</i>: The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.en_US
dc.descriptionSubmitted manuscript version. Published version available at <a href=https://doi.org/10.3233/NRE-161406> https://doi.org/10.3233/NRE-161406</a>.en_US
dc.identifier.citationManskow, U.E., Friborg, O., Røe, C., Braine, M., Damsgård, E. & Anke, A. (2017). Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian Longitudinal study. NeuroRehabilitation. 40(2), 211-222. https://doi.org/10.3233/NRE-161406en_US
dc.identifier.cristinIDFRIDAID 1413566
dc.identifier.doi10.3233/NRE-161406
dc.identifier.issn1053-8135
dc.identifier.issn1878-6448
dc.identifier.urihttps://hdl.handle.net/10037/13089
dc.language.isoengen_US
dc.publisherIOS Pressen_US
dc.relation.journalNeuroRehabilitation (Reading, MA)
dc.rights.accessRightsopenAccessen_US
dc.subjectVDP::Samfunnsvitenskap: 200::Psykologi: 260en_US
dc.subjectVDP::Social science: 200::Psychology: 260en_US
dc.subjectCaregiver burdenen_US
dc.subjectlife satisfactionen_US
dc.subjecttraumatic brain injuryen_US
dc.subjectsocial networken_US
dc.titlePatterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian Longitudinal study.en_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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