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dc.contributor.authorFlatø, Berit
dc.contributor.authorRygg, Marite
dc.contributor.authorNordal, Ellen Berit
dc.contributor.authorRøisland, Mona
dc.contributor.authorØdegård, Hanne Beate
dc.contributor.authorHoftun, Gry Børmark
dc.contributor.authorSongstad, Nils Thomas
dc.contributor.authorConsolaro, Alessandro
dc.contributor.authorBovis, Francesca
dc.contributor.authorRuperto, Nicolino
dc.date.accessioned2019-01-08T13:44:28Z
dc.date.available2019-01-08T13:44:28Z
dc.date.issued2018-04-07
dc.description.abstractThe Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Norwegian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 301 JIA patients (3.3% systemic, 41.2% oligoarticular, 25.9% RF negative polyarthritis, and 29.6% other categories) and 74 healthy children were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Norwegian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.en_US
dc.description.sponsorshipIstituto Giannina Gaslini, Genoa, Italyen_US
dc.descriptionSource at <a href=https://doi.org/10.1007/s00296-018-3963-y> https://doi.org/10.1007/s00296-018-3963-y</a>en_US
dc.identifier.citationFlatø, B., Rygg, M., Nordal, E., Røisland, M., Ødegård, H.B., Hoftun, G.B., ... Ruperto, N. (2018). The Norwegian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). <i>Rheumatology International</i>, 38, 291-298. https://doi.org/10.1007/s00296-018-3944-1en_US
dc.identifier.cristinIDFRIDAID 1592995
dc.identifier.doi10.1007/s00296-018-3963-y
dc.identifier.issn0172-8172
dc.identifier.issn1437-160X
dc.identifier.urihttps://hdl.handle.net/10037/14394
dc.language.isoengen_US
dc.publisherSpringer Verlag (Germany)en_US
dc.relation.journalRheumatology International
dc.rights.accessRightsopenAccessen_US
dc.subjectVDP::Medical disciplines: 700::Clinical medical disciplines: 750::Rheumatology: 759en_US
dc.subjectVDP::Medisinske Fag: 700::Klinisk medisinske fag: 750::Reumatologi: 759en_US
dc.subjectJuvenile idiopathic arthritisen_US
dc.subjectDisease statusen_US
dc.subjectFunctional abilityen_US
dc.subjectHealth-related quality of lifeen_US
dc.subjectJAMARen_US
dc.titleThe Norwegian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)en_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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