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dc.contributor.authorAlvestad, Line
dc.date.accessioned2023-01-10T12:15:41Z
dc.date.available2023-01-10T12:15:41Z
dc.date.issued2022-12-31
dc.description.abstractBackground - Inflammatory bowel disease (IBD), consisting of Crohn's disease (CD) and ulcerative colitis (UC), is a chronic disorder with a considerable negative impact on health-related quality of life (HRQoL). During the past decade, IBD nurse specialists have been increasingly involved in follow-up care of IBD outpatients, in a consultative and coordinating role, closely cooperating with gastroenterologists.<p> <p>Whether patients’ HRQoL differs between nurses’ follow-up care (NF) and conventional follow-up care (CF) has not been widely researched and the aim of this study was to compare two different follow-up regimes with respect to patients’ HRQoL.<p> <p>Methods - This cross-sectional, multicenter study involved seven centers; five organized as CF, two as NF.<p> <p>Results - A total of 304 patients aged 18–80 years, 174 females and 130 males, were included, of whom 140 received care under the NF model and 164 under the CF model. Participants in the NF group had a statistically significant higher median total score on the Inflammatory Bowel Disease Questionnaire (IBDQ) (p-value < .001). This pattern could also be seen in the sub-scores of the different IBDQ domains. Despite a trend of higher IBDQ score in all domains in the NF model, the overall result in our study did not reach the limit of 16 points, defined as clinically significant. A higher proportion of NF patients had IBDQ scores defined as remission, as well as a statistically significant higher frequency of outpatient check-ups during a two-year follow-up period.<p> <p>Conclusions - Nurse-led models are not inferior to conventional models with regards to patient reported HRQoL except in the social domain where the model showed to be clinically significant better. Further studies are needed to advance efforts to implement these models and increase access to IBD care.en_US
dc.identifier.citationAlvestad. Health-related quality of life in inflammatory bowel disease: a comparison of patients receiving nurse-led versus conventional follow-up care. BMC Health Services Research. 2022
dc.identifier.cristinIDFRIDAID 2098595
dc.identifier.doi10.1186/s12913-022-08985-1
dc.identifier.issn1472-6963
dc.identifier.urihttps://hdl.handle.net/10037/28122
dc.language.isoengen_US
dc.publisherBMCen_US
dc.relation.journalBMC Health Services Research
dc.rights.holderCopyright 2022 The Author(s)en_US
dc.rights.urihttps://creativecommons.org/licenses/by/4.0en_US
dc.rightsAttribution 4.0 International (CC BY 4.0)en_US
dc.titleHealth-related quality of life in inflammatory bowel disease: a comparison of patients receiving nurse-led versus conventional follow-up careen_US
dc.type.versionpublishedVersionen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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Attribution 4.0 International (CC BY 4.0)
Except where otherwise noted, this item's license is described as Attribution 4.0 International (CC BY 4.0)