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dc.contributor.authorAndersson, Anna-Karin Margareta
dc.date.accessioned2023-09-11T11:02:26Z
dc.date.available2023-09-11T11:02:26Z
dc.date.issued2020-09-03
dc.description.abstractThis article is the first indepth ethical analysis of empirical studies that support the claim that children born without major parts of their cerebral cortex are capable of conscious experiences and have a rudimentary capacity for agency. Congenitally decorticate children have commonly been classified as persistently vegetative, with serious consequences for their well-being and opportunities to flourish. The paper begins with an explication of the rights-based normative framework of the argument, including conceptual analysis of the terms ‘agency’, ‘potentiality for agency’ and ‘gradual approach of agency’. It critically examines Alan Gewirth’s account of the criteria for being a rights bearer and principles for settling rights conflicts between agents and potential agents. It then applies the rights-based normative framework to the ethical challenges associated with care for congenitally decorticate children. It argues that recent empirical studies support the claim that the concepts ‘potential for agency’ and ‘capacity for rudimentary agency’ apply to children who are born without major parts of their cerebral cortex. The article finally discusses important medical ethical implications of these results. It specifically focuses on congenitally decorticate children’s preparatory rights to a stimulating intellectual and social environment.en_US
dc.identifier.citationAndersson. Congenitally decorticate children's potential and rights. Journal of Medical Ethics. 2020:1-8en_US
dc.identifier.cristinIDFRIDAID 1819353
dc.identifier.doi10.1136/medethics-2020-106163
dc.identifier.issn0306-6800
dc.identifier.issn1473-4257
dc.identifier.urihttps://hdl.handle.net/10037/30906
dc.language.isoengen_US
dc.publisherBMJ Publishing Groupen_US
dc.relation.journalJournal of Medical Ethics
dc.rights.accessRightsopenAccessen_US
dc.rights.holderCopyright 2020 The Author(s)en_US
dc.titleCongenitally decorticate children's potential and rightsen_US
dc.type.versionacceptedVersionen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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