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dc.contributor.authorHägglund, Maria
dc.contributor.authorKharko, Anna
dc.contributor.authorBärkås, Annika
dc.contributor.authorBlease, Charlotte
dc.contributor.authorCajander, Åsa
dc.contributor.authorDesRoches, Catherine
dc.contributor.authorFagerlund, Asbjørn Johansen
dc.contributor.authorHagström, Josefin
dc.contributor.authorHuvila, Isto
dc.contributor.authorHörhammer, Iiris
dc.contributor.authorKane, Bridget
dc.contributor.authorKlein, Gunnar O.
dc.contributor.authorKristiansen, Eli
dc.contributor.authorMoll, Jonas
dc.contributor.authorMuli, Irene
dc.contributor.authorRexhepi, Hanife
dc.contributor.authorRiggare, Sara
dc.contributor.authorScandurra, Isabella
dc.contributor.authorSimola, Saija
dc.contributor.authorSoone, Hedvig
dc.contributor.authorWang, Bo
dc.contributor.authorZolbin, Maedeh Ghorbanian
dc.contributor.authorÅhlfeldt, Rose-Mharie
dc.contributor.authorKujala, Sari
dc.contributor.authorJohansen, Monika Alise
dc.date.accessioned2023-10-30T12:31:29Z
dc.date.available2023-10-30T12:31:29Z
dc.date.issued2023
dc.description.abstractThe Nordic countries are forerunners in online record access (ORA) which has now become widespread. The importance of accessible and structured health data has also been highlighted by policymakers internationally. To ensure the full realization of ORA’spotential in the short and long term, there is a pressing need to study ORA from a cross-disciplinary, technical, clinical, humanistic, and social sciences perspective that looks beyond strictly technical aspects. In this viewpoint paper, we explore the policy changes in the European Health Data Space (EHDS) proposal to advance ORA across the European Union, and introduce a Nordic-led research project that carries out the first of its kind, large-scale international investigation of patients’ ORA; NORDeHEALTH. We argue that the EHDS proposal will pave the way for patients to access and control third-party access to their electronic health records (EHRs). This will have implications within Europe and globally as it will further extend the boundaries for accessing and using EHRs for primary and secondary data use. Research such as that led by the NORDeHEALTH project is essential in guiding the design and implementation of solutions to meet the requirements of the EHDS proposal. Further international collaboration and research are needed to ensure that socio-technical and contextual factors are considered to ensure successful and secure implementation.en_US
dc.identifier.citationHägglund, Kharko, Bärkås, Blease, Cajander, DesRoches, Fagerlund, Hagström, Huvila, Hörhammer, Kane, Klein, Kristiansen, Moll, Muli, Rexhepi, Riggare, Scandurra, Simola, Soone, Wang, Zolbin, Åhlfeldt, Kujala, Johansen. NORDeHEALTH – Learning from the Nordic Experiences of Patient Online Record Access. Journal of Medical Internet Research. 2023en_US
dc.identifier.cristinIDFRIDAID 2147947
dc.identifier.doi10.2196/preprints.49084
dc.identifier.issn1438-8871
dc.identifier.urihttps://hdl.handle.net/10037/31646
dc.language.isoengen_US
dc.publisherJMIR Publicationsen_US
dc.relation.journalJournal of Medical Internet Research
dc.rights.accessRightsopenAccessen_US
dc.rights.holderCopyright 2023 The Author(s)en_US
dc.rights.urihttps://creativecommons.org/licenses/by/4.0en_US
dc.rightsAttribution 4.0 International (CC BY 4.0)en_US
dc.titleNORDeHEALTH – Learning from the Nordic Experiences of Patient Online Record Accessen_US
dc.type.versionsubmittedVersionen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US


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Attribution 4.0 International (CC BY 4.0)
Except where otherwise noted, this item's license is described as Attribution 4.0 International (CC BY 4.0)