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dc.contributor.authorAnke, Audny
dc.contributor.authorManskow, Unn Sollid
dc.contributor.authorFriborg, Oddgeir
dc.contributor.authorRøe, Cecilie
dc.contributor.authorArntzen, Cathrine
dc.date.accessioned2017-03-21T13:02:34Z
dc.date.available2017-03-21T13:02:34Z
dc.date.issued2016-11-28
dc.description.abstractBackground: Family members are important for support and care of their close relative after severe traumas, and their experiences are vital health care quality indicators. The objective was to describe the development of the Family Experiences of in-hospital Care Questionnaire for family members of patients with severe Traumatic Brain Injury (FECQTBI), and to evaluate its psychometric properties and validity. Methods: The design of the study is a Norwegian multicentre study inviting 171 family members. The questionnaire developmental process included a literature review, use of an existing instrument (the parent experience of paediatric care questionnaire), focus group with close family members, as well as expert group judgments. Items asking for family care experiences related to acute wards and rehabilitation were included. Several items of the paediatric care questionnaire were removed or the wording of the items was changed to comply with the present purpose. Questions covering experiences with the inpatient rehabilitation period, the discharge phase, the family experiences with hospital facilities, the transfer between departments and the economic needs of the family were added. The developed questionnaire was mailed to the participants. Exploratory factor analyses were used to examine scale structure, in addition to screening for data quality, and analyses of internal consistency and validity. Results: The questionnaire was returned by 122 (71%) of family members. Principal component analysis extracted six dimensions (eigenvalues > 1.0): acute organization and information (10 items), rehabilitation organization (13 items), rehabilitation information (6 items), discharge (4 items), hospital facilities-patients (4 items) and hospital facilities-family (2 items). Items related to the acute phase were comparable to items in the two dimensions of rehabilitation: organization and information. All six subscales had high Cronbach’s alpha coefficients >0.80. The construct validity was confirmed. Conclusion: The FECQ-TBI assesses important aspects of in-hospital care in the acute and rehabilitation phases, as seen from a family perspective. The psychometric properties and the construct validity of the questionnaire were good, hence supporting the use of the FECQ-TBI to assess quality of care in rehabilitation departments.en_US
dc.description.sponsorshipFunding study was conducted with grants from the North Norwegian Health Authorities, grant number 8744/SFP1108-13.en_US
dc.descriptionPublished version. Source at http://doi.org/10.1186/s12913-016-1884-6. License CC BY 4.0.en_US
dc.identifier.citationAnke A, Manskow UE, Friborg O, Røe C, Arntzen C. The family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation study. BMC Health Services Research. 2016;16(1):1-11en_US
dc.identifier.issn1472-6963
dc.identifier.otherFRIDAID 1428780
dc.identifier.other10.1186/s12913-016-1884-6
dc.identifier.urihttp://hdl.handle.net/10037/10796
dc.language.isoengen_US
dc.publisherBioMed Centralen_US
dc.relation.journalBMC Health Services Research
dc.rights.accessRightsopenAccessen_US
dc.subjectVDP::Medisinske Fag: 700::Klinisk medisinske fag: 750en_US
dc.subjectVDP::Medical disciplines: 700::Clinical medical disciplines: 750en_US
dc.subjectPatient satisfactionen_US
dc.subjectFamily satisfactionen_US
dc.subjectQuality of careen_US
dc.subjectRehabilitationen_US
dc.subjectParent satisfactionen_US
dc.subjectTraumatic brain injuryen_US
dc.titleThe family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation studyen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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