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‘Not a film about my slackness’: Making sense of medically unexplained illness in youth using collaborative visual methods

Permanent lenke
https://hdl.handle.net/10037/13492
DOI
https://doi.org/10.1177/1363459318785696
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article.pdf (419.6Kb)
Accepted manuscript version (PDF)
Dato
2018-07-06
Type
Journal article
Tidsskriftartikkel
Peer reviewed

Forfatter
Østbye, Silje Vagli; Kvamme, Maria Fredriksen; Wang, Catharina Elisabeth Arfwedson; Haavind, Hanne; Waage, Trond; Risør, Mette Bech
Sammendrag
Persistent medically unexplained symptoms have debilitating consequences for adolescents, dramatically altering their social world and future aspirations. Few studies have focused on social and moral aspects of illness experience relevant to adolescents. In this study, the aim is to explore these aspects in depth by focusing on a single case and to address how young people attempt to create social accountability in a search for meaning when facing illness and adversity. The study is based on a view of meaning as dialogically constituted during the research process, which calls for the use of collaborative film methodology and life-mode interviewing. With a dialogic–performative approach to a narrative emplotment of medically unexplained symptoms, we present Peter as intentional and purposive, and as a person who in a reflective process of meaning making claimed his own voice and developed his own strategies of coping with his illness. The analysis brings forward a narrative of suffering, hope and intentionality that is configured by the immediate limited possibilities of agency due to Peter’s medical condition. It is, however, configured to an even greater degree by aspirations, that is, to become an accountable person through social experiences and to meet sociocultural and moral expectations of being an adolescent. The study provides insight into relational and existential aspects of meaning making in dealing with contested illness in youth and points to the potential of visual and other experience-near methods for supporting adolescents in their coping attempts and in overcoming communication barriers in everyday life and clinical encounters.
Beskrivelse
Accepted manuscript version. Published version available at https://doi.org/10.1177/1363459318785696.
Er en del av
Final version of this paper is part of:

Kvamme, M.F. (2020). Suffering, agency and care in medically unexplained symptoms (MUS). An ethnographic study of the social course and reframing of MUS in Norwegian youth. (Doctoral thesis). https://hdl.handle.net/10037/18056.

 
Østbye, S.V. (2020). Terrains of Uncertainty. Communicative Challenges of Medically Unexplained Illness in Youth. (Doctoral thesis). https://hdl.handle.net/10037/19204
Forlag
SAGE Publications
Sitering
Østbye, S.V., Kvamme, M.F., Wang, C.E.A., Haavind, H., Waage, T. & Risør, M.B. (2018). ‘Not a film about my slackness’: Making sense of medically unexplained illness in youth using collaborative visual methods. Health, 1-21. https://doi.org/10.1177/1363459318785696
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