Defining and Scoping Participatory Health Informatics - An eDelphi Study
Permanent lenke
https://hdl.handle.net/10037/30119Dato
2023-03-14Type
Journal articleTidsskriftartikkel
Peer reviewed
Forfatter
Denecke, Kerstin; Rivera-Romero, Octavio; Petersen, Carolyn; Benham-Hutchins, Marge; Cabrer, Miguel; Davies, Shauna; Grainger, Rebecca; Hussein, Rada; Lopez Campos, Guillermo; Martin-Sanchez, Fernando J.; McKillop, Molle; Merolli, Mark; Miron-Shatz, Talya; Trigo, Jesús Daniel; Wright, Graham; Wynn, Rolf; Hullin, Carola; Gabarron, EliaSammendrag
Objective - This article proposes a preliminary definition of PHI and defines the scope of the field.
Methods - We used an adapted Delphi study design to gain consensus from participants on a definition developed from a previous review of literature. From the literature we derived a set of attributes describing PHI as comprising 18 characteristics, 14 aims, and 4 relations. We invited researchers, health professionals, and health informaticians to score these characteristics and aims of PHI and their relations to other fields over three survey rounds. In the first round participants were able to offer additional attributes for voting.
Results - The first round had 44 participants, with 28 participants participating in all three rounds. These 28 participants were gender-balanced and comprised participants from industry, academia, and health sectors from all continents. Consensus was reached on 16 characteristics, 9 aims, and 6 related fields.
Discussion - The consensus reached on attributes of PHI describe PHI as a multidisciplinary field that uses information technology and delivers tools with a focus on individual-centered care. It studies various effects of the use of such tools and technology. Its aims address the individuals in the role of patients, but also the health of a society as a whole. There are relationships to the fields of health informatics, digital health, medical informatics, and consumer health informatics.
Conclusion - We have proposed a preliminary definition, aims, and relationships of PHI based on literature and expert consensus. These can begin to be used to support development of research priorities and outcomes measurements.