‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer
Permanent link
https://hdl.handle.net/10037/35261Date
2024-06-06Type
Journal articleTidsskriftartikkel
Peer reviewed
Abstract
Narrative methods have been shown to help people with cancer to
create meaning, find hope and restore a sense of coherence in life.
Likewise, the combination of rehabilitation and palliative care for
people with life-threatening illness is receiving increasing interest
and is generally perceived as beneficial for patients. Four narrative
courses combining rehabilitation and palliative care approaches for
people who have or have had cancer were carried out in Denmark
between 2021 and 2022. An ethnographic field study revealed that
some of the course participants experienced harm during the
courses and therefore chose to withdraw. Findings show that
a rehabilitation approach dominated in the courses and that the
participants’ experiences of harm occurred in a complex interplay
between the participants, the professionals and the specific narrative exercises. While some participants’ stories were recognised as
legitimate and meaningful and were continuously supported and
encouraged, other participants’ stories of suffering were
suppressed.
Publisher
Taylor & FrancisCitation
Gärtner, Blix, Raunkiær, Timm. ‘There is nothing beautiful or life-affirming in it’: experiences of harm in a narrative course combining rehabilitative and palliative care approaches for people who have or have had cancer. Mortality. 2024Metadata
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