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dc.contributor.authorDybwik, Knut
dc.contributor.authorTollåli, Terje
dc.contributor.authorNielsen, Erik Waage
dc.contributor.authorBrinchmann, Berit Støre
dc.date.accessioned2012-02-21T12:47:40Z
dc.date.available2012-02-21T12:47:40Z
dc.date.issued2011
dc.description.abstractAn increasing number of individuals with complex health care needs now receive life-long and lifeprolonging ventilatory support at home. Family members often take on the role of primary caregivers. The aim of this study was to explore the experiences of families giving advanced care to family members dependent on home mechanical ventilation. Using qualitative research methods, a Grounded Theory influenced approach was used to explore the families’ experiences. A total of 15 family members with 11 ventilator-dependent individuals (three children and eight adults) were recruited for 10 in-depth interviews. The core category, “fighting the system,” became the central theme as family members were asked to describe their experiences. In addition, we identified three subcategories, “lack of competence and continuity”, “being indispensable” and “worth fighting for”. This study revealed no major differences in the families’ experiences that were dependent on whether the ventilator-dependent individual was a child or an adult. These findings show that there is a large gap between family members’ expectations and what the community health care services are able to provide, even when almost unlimited resources are available. A number of measures are needed to reduce the burden on these family members and to make hospital care at home possible. In the future, the gap between what the health care can potentially provide and what they can provide in real life will rapidly increase. New proposals to limit the extremely costly provision of home mechanical ventilation in Norway will trigger new ethical dilemmas that should be studied further.en
dc.descriptionThis article is part og Knut Dybwig's doctoral thesis. Available in Munin at <a href=http://hdl.handle.net/10037/3692>http://hdl.handle.net/10037/3692</a>en
dc.identifier.citationBMC Health Services Research (2011) 11:156en
dc.identifier.cristinIDFRIDAID 846787
dc.identifier.doidoi: 10.1186/1472-6963-11-156
dc.identifier.issn1472-6963
dc.identifier.urihttps://hdl.handle.net/10037/3841
dc.identifier.urnURN:NBN:no-uit_munin_3563
dc.language.isoengen
dc.publisherBioMed Centralen
dc.rights.accessRightsopenAccess
dc.subjectVDP::Medical disciplines: 700::Clinical medical disciplines: 750en
dc.subjectVDP::Medisinske Fag: 700::Klinisk medisinske fag: 750en
dc.title"Fighting the system" : families caring for ventilator-dependent children and adults with complex health care needs at homeen
dc.typeJournal articleen
dc.typeTidsskriftartikkelen
dc.typePeer revieweden


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