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dc.contributor.authorBarlindhaug, Grete
dc.contributor.authorUmar, Eric
dc.contributor.authorWazakili, Margaret
dc.contributor.authorEmaus, Nina
dc.date.accessioned2017-03-21T10:09:39Z
dc.date.available2017-03-21T10:09:39Z
dc.date.issued2016-08-24
dc.description.abstractBackground:<br>Rehabilitation personnel need to be sensitive to the cultural aspects that constitute the environment of a disabled child’s family life.<br> Objectives:<br>The aim of this study was to gain insight on how families experience parenting of disabled children and how the families experience the support provided by the rehabilitation system in Malawi.<br> Method:<br>An anthropological field study combining interviews and observations was conducted in a rural district of Malawi in 2011. Permission was granted to follow four families, and this study presents the stories of two families, whose children have severe disabilities. We used phenomenological and narrative analyses to make sense of the stories.<br> Results:<br>The findings indicate that families with disabled children invest time and emphasise care for their disabled children. They feel enriched by their experience despite challenging situations with little support from the rehabilitation services. High standards of care demonstrating positive and moral attitudes have earned these families respect in their communities. Storytelling has created an opportunity for the families to understand and interpret their challenging situation with inherent contextual meaning.<br> Conclusion:<br>This study shows that families with disabled children draw on cultural and structural strengths that rehabilitation professionals should be aware of in their support to mothers and other caregivers of children with disabilities.en_US
dc.descriptionSource: <a href=http://dx.doi.org/10.4102/ajod.v5i1.254>doi: 10.4102/ajod.v5i1.254</a>en_US
dc.identifier.citationBarlindhaug, G., Umar, E., Wazakili, M. & Emaus, N., 2016, ‘Living with disabled children in Malawi: Challenges and rewards’, African Journal of Disability 5(1), a254. http://dx.doi.org/10.4102/ajod.v5i1.254en_US
dc.identifier.cristinIDFRIDAID 1449927
dc.identifier.doihttp://dx.doi.org/10.4102/ajod.v5i1.254
dc.identifier.issn2226-7220
dc.identifier.urihttps://hdl.handle.net/10037/10791
dc.language.isoengen_US
dc.publisherAOSISen_US
dc.relation.journalAfrican Journal of Disability
dc.rights.accessRightsopenAccessen_US
dc.subjectVDP::Medisinske Fag: 700::Helsefag: 800en_US
dc.subjectVDP::Medical disciplines: 700::Health sciences: 800en_US
dc.subjectVDP::Samfunnsvitenskap: 200::Sosialantropologi: 250en_US
dc.subjectVDP::Social science: 200::Social anthropology: 250en_US
dc.titleLiving with disabled children in Malawi: Challenges and rewardsen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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