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dc.contributor.authorNygård, Carina
dc.contributor.authorClancy, Anne
dc.date.accessioned2019-04-09T08:28:49Z
dc.date.available2019-04-09T08:28:49Z
dc.date.issued2018-05-13
dc.description.abstract<i>Aims and objectives</i>: To aggregate, synthesise and interpret qualitative research studies of parents’ experiences of caring for a child with special health‐care needs at home.<p> <p><i>Background</i>: Advances in the field of medical and nursing science have ensured better survival rates for children with chronic illnesses. Many of these children have significant special health‐care needs. Today parents assume a caregiver role, undertaking tasks previously provided by nurses in hospitals. As the complexity of care delivered by parents continues to develop, synthesised knowledge can provide an evidence base that will support and guide nurses when caring for these families.<p> <p><i>Design</i>: Metasynthesis.<p> <p>Methods</i>: Based upon a systematic search protocol, a structured literature search, covering the years 2003–2016, was conducted in five electronic databases. Ten studies were included and appraised using the Critical Appraisal Skills Program assessment tool. A metasummary and a metasynthesis were undertaken guided by the metasynthesis methodology as described by Sandelowski and Barroso (Handbook for synthesizing qualitative research. New York, NY: Springer, 2007).<p> <p><i>Results</i>: The results were interpreted and integrated under the overarching theme “unsung heroes, flying blind,” supported by eight elucidating categories that illustrate aspects of the parents’ life world.<p> <p>Conclusions</i>: The enormous burden of care can weaken the parents’ will to carry on and result in a decreased ability to provide care. This can have an impact on the parents’ health, family functioning and the sick child's potential health outcomes. Nurses are in a unique position to help these families and should be better prepared for the role.<p>en_US
dc.descriptionThis is the peer reviewed version of the following article: Unsung heroes, flying blind - A metasynthesis of parents' experiences of caring for children with special health care needs at home, which has been published in final form at <a href=https://doi.org/10.1111/jocn.14512>https://doi.org/10.1111/jocn.14512. </a>. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.en_US
dc.identifier.citationNygård, C. & Clancy, A. (2018). Unsung heroes, flying blind - A metasynthesis of parents' experiences of caring for children with special health care needs at home. <i>Journal of Clinical Nursing, 27</i>(15-16), 3179-3196. https://doi.org/10.1111/jocn.14512en_US
dc.identifier.cristinIDFRIDAID 1594190
dc.identifier.doi10.1111/jocn.14512
dc.identifier.issn0962-1067
dc.identifier.issn1365-2702
dc.identifier.urihttps://hdl.handle.net/10037/15179
dc.language.isoengen_US
dc.publisherWileyen_US
dc.relation.journalJournal of Clinical Nursing
dc.rights.accessRightsopenAccessen_US
dc.subjectchildrenen_US
dc.subjectcommunityen_US
dc.subjectmetasynthesisen_US
dc.subjectnursingen_US
dc.subjectparents’experienceen_US
dc.subjectspecial health-care needsen_US
dc.subjectVDP::Medical disciplines: 700::Health sciences: 800::Nursing science: 808en_US
dc.subjectVDP::Medisinske Fag: 700::Helsefag: 800::Sykepleievitenskap: 808en_US
dc.titleUnsung heroes, flying blind - A metasynthesis of parents' experiences of caring for children with special health care needs at homeen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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