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dc.contributor.authorMikola, Katriina
dc.contributor.authorRebane, Katariina
dc.contributor.authorArnstad, Ellen Dalen
dc.contributor.authorBerntson, Lillemor
dc.contributor.authorFasth, Anders
dc.contributor.authorGlerup, Mia
dc.contributor.authorHerlin, Troels
dc.contributor.authorKautiainen, Hannu
dc.contributor.authorNielsen, Susan
dc.contributor.authorNordal, Ellen Berit
dc.contributor.authorPeltoniemi, Suvi
dc.contributor.authorRygg, Marite
dc.contributor.authorRypdal, Veronika
dc.contributor.authorZak, Marek
dc.contributor.authorAalto, Kristiina
dc.description.abstractBackground: With juvenile idiopathic arthritis (JIA), there are several protocols and practices used worldwide for the transition from paediatric to adult care. In this study, we examined the transferral rates and disease activity after transition, as well as the disease- and health-related outcomes. We also introduce the transition practices employed in the Nordic countries.<p> <p>Methods: The study population comprised 408 participants with a disease onset from 1997 to 2000 who attended an 18-year follow-up visit in this population-based Nordic JIA cohort study. The patients were retrospectively divided into three subgroups: Patients transferred directly from paediatric care to adult rheumatology care, patients referred there later, and patients never transferred during the 18-year follow-up period. <p>Results: One hundred and sixty-three (40%) JIA patients had been directly transferred to an adult clinic. The cumulative transition rate was 52%, but there were significant differences between the participating centres. Fifty patients had later been referred to an adult clinic. Among the 195 patients who had never been transferred, 39% were found to have disease activity at the study visit. <p>Conclusion: This study highlights the need to reconsider transition practices to avoid our undesirable finding of patients with disease activity in JIA, but no appropriate health care follow-upen_US
dc.identifier.citationMikola, Rebane, Arnstad, Berntson, Fasth, Glerup, Herlin, Kautiainen, Nielsen, Nordal, Peltoniemi, Rygg, Rypdal, Zak, Aalto. Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience. Pediatric Rheumatology. 2022;20(1)en_US
dc.identifier.cristinIDFRIDAID 2068051
dc.relation.journalPediatric Rheumatology
dc.rights.holderCopyright 2022 The Author(s)en_US
dc.rightsAttribution 4.0 International (CC BY 4.0)en_US
dc.titleTransitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experienceen_US
dc.typeJournal articleen_US
dc.typePeer revieweden_US

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Attribution 4.0 International (CC BY 4.0)
Except where otherwise noted, this item's license is described as Attribution 4.0 International (CC BY 4.0)